{"id":1494,"date":"2022-10-06T13:17:59","date_gmt":"2022-10-06T12:17:59","guid":{"rendered":"https:\/\/sites.manchester.ac.uk\/autism-at-manchester\/?p=1494"},"modified":"2022-10-06T20:21:56","modified_gmt":"2022-10-06T19:21:56","slug":"exploring-autistic-friendships-at-school-reflecting-on-setting-up-supportive-environments","status":"publish","type":"post","link":"https:\/\/sites.manchester.ac.uk\/autism-at-manchester\/2022\/10\/06\/exploring-autistic-friendships-at-school-reflecting-on-setting-up-supportive-environments\/","title":{"rendered":"Exploring autistic friendships at school &amp; reflecting on setting up supportive environments"},"content":{"rendered":"<p>[et_pb_section bb_built=&#8221;1&#8243; admin_label=&#8221;section&#8221; fullwidth=&#8221;on&#8221; next_background_color=&#8221;#000000&#8243; global_module=&#8221;322&#8243;][et_pb_fullwidth_menu global_parent=&#8221;322&#8243; _builder_version=&#8221;3.0.106&#8243; menu_id=&#8221;7&#8243; submenu_direction=&#8221;downwards&#8221; fullwidth_menu=&#8221;off&#8221; background_layout=&#8221;dark&#8221; module_class=&#8221;main-navigation&#8221; \/][\/et_pb_section][et_pb_section bb_built=&#8221;1&#8243; fullwidth=&#8221;off&#8221; specialty=&#8221;on&#8221; prev_background_color=&#8221;#000000&#8243; next_background_color=&#8221;#1d1d1d&#8221;][et_pb_column type=&#8221;2_3&#8243; specialty_columns=&#8221;2&#8243;][et_pb_row_inner locked=&#8221;off&#8221;][et_pb_column_inner type=&#8221;4_4&#8243; saved_specialty_column_type=&#8221;2_3&#8243;][et_pb_post_title _builder_version=&#8221;3.0.106&#8243; title=&#8221;on&#8221; meta=&#8221;on&#8221; author=&#8221;on&#8221; date=&#8221;on&#8221; categories=&#8221;on&#8221; comments=&#8221;on&#8221; featured_image=&#8221;on&#8221; featured_placement=&#8221;above&#8221; text_color=&#8221;dark&#8221; text_background=&#8221;off&#8221; locked=&#8221;on&#8221; parent_locked=&#8221;off&#8221; \/][et_pb_text _builder_version=&#8221;3.17.6&#8243; background_layout=&#8221;light&#8221; parent_locked=&#8221;off&#8221;]<\/p>\n<p><strong>Research team:<\/strong> Charlotte Butter, Charlotte Alcock, Emily Randolph, Sarah Spurr, Alexandra Sturrock and Kathy Leadbitter<\/p>\n<p>The research team are from The University of Manchester and the Paediatric Speech &amp; Language Therapy Team, Manchester NHS Foundation Trust (MFT)<\/p>\n<h2>Background<\/h2>\n<h3>A Patient &amp; Public Involvement &amp; Engagement (PPIE) project<\/h3>\n<p>Autism is a common form of neurodiversity (Kapp, 2020), typified by differences in social communication (DSM-5, 2022), which can impact upon interactions &amp; friendships, particularly with people of a different neurotype (Williams et al., 2021). Positive friendships have been shown to increase self-esteem &amp; reduce feelings of anxiety and depression (Buhrmester, 1990). However, autistic children are often unable to reap these benefits, reporting higher rates of loneliness &amp; poorer quality friendships (Capps et al., 1996). Friendships with other autistic individuals are considered more accessible &amp; easier to sustain (Crompton et al., 2020) increasing support networks, feelings of acceptance &amp; self-awareness (Milton &amp; Sims, 2016). However, opportunities to develop these friendships do not always occur naturally in childhood.<\/p>\n<p>To date, few programmes have targeted the social communication needs of autistic teenagers (Marriage et al., 1995). MFT aimed to address that gap with a training package enabling schools to host social groups for adolescents. The training entailed two teacher-focused sessions (\u2018Autism from the other end of the lens\u2019 &amp; \u2018Skills, ideas, resources &amp; tips for setting up groups\u2019) &amp; one parent-focused session (\u2018Connect &amp; continue positive relationships beyond school\u2019). Ultimately, training could facilitate school-based social groups offering tailored but naturalistic environments for individuals to make friends &amp; develop social communication confidence.<\/p>\n<p>This PPIE project aimed to explore the lived-experiences of autistic young people in their attempts to make friends in school &amp; sought their opinion on developing relevant and acceptable training materials (in line with co-production techniques, Farr et al., 2021)<\/p>\n<h2>What did we do?<strong><br \/><\/strong><\/h2>\n<p>We contacted local groups for autistic people by email &amp; shared information about the PPIE project on social media. Interested people filled out an online form about themselves. We were aiming for a representative mix of ages, genders &amp; ethnicities. We chose volunteers aged 16-25 as they could reflect on recent school experiences that were likely to be similar to experiences of current pupils. Volunteers&#8217; consent was gained &amp; they were happy for us to share anonymised quotes. Ethics was not acquired as this was a PPIE project rather than a research project. Staff &amp; students from The University of Manchester interviewed volunteers online by video, chat or written form. Transcripts of interviews were analysed thematically to find common themes &#8211; experiences or ideas that were shared by several volunteers.<\/p>\n<h2>Who took part?<strong><br \/><\/strong><\/h2>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"size-full wp-image-1496 alignright\" src=\"https:\/\/sites.manchester.ac.uk\/autism-at-manchester\/wp-content\/uploads\/sites\/333\/2022\/10\/participant-info.jpg\" alt=\"Infographic representing who took part in the study.\" width=\"436\" height=\"175\" srcset=\"https:\/\/sites.manchester.ac.uk\/autism-at-manchester\/wp-content\/uploads\/sites\/333\/2022\/10\/participant-info.jpg 436w, https:\/\/sites.manchester.ac.uk\/autism-at-manchester\/wp-content\/uploads\/sites\/333\/2022\/10\/participant-info-300x120.jpg 300w, https:\/\/sites.manchester.ac.uk\/autism-at-manchester\/wp-content\/uploads\/sites\/333\/2022\/10\/participant-info-150x60.jpg 150w, https:\/\/sites.manchester.ac.uk\/autism-at-manchester\/wp-content\/uploads\/sites\/333\/2022\/10\/participant-info-250x100.jpg 250w, https:\/\/sites.manchester.ac.uk\/autism-at-manchester\/wp-content\/uploads\/sites\/333\/2022\/10\/participant-info-350x140.jpg 350w\" sizes=\"(max-width: 436px) 100vw, 436px\" \/>30 people signed up and 15 participated.<\/p>\n<p>14 were White, 1 was Black African or Caribbean British.<\/p>\n<p>10 were female, 5 were male.<\/p>\n<p>Ages 16 &#8211; 24.<\/p>\n<h2>What did our volunteers tell us?<\/h2>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"size-full wp-image-1501 alignleft\" src=\"https:\/\/sites.manchester.ac.uk\/autism-at-manchester\/wp-content\/uploads\/sites\/333\/2022\/10\/teen-group.jpg\" alt=\"A cartoon of a group of teens with arms around each other.\" width=\"146\" height=\"191\" \/>Findings showed that the opinions of autistic young people were essential in developing a resource &amp; training package for teenagers in schools. Themes from the analysis showed a need for specific physical environments, certain structures for activities &amp; an inclusive attitude of facilitators. They also indicated a need for unforced, naturalistic opportunities for developing social interactions &amp; friendships (see below for more details). Findings also indicated that training for professionals running the groups should include autistic people telling their story. Content should also include: training about variation in presentation &amp; preferences between autistic individuals, especially in less well recognised groups (e.g., in girls), the effects of anxiety, differences in friendship motivation, managing the sensory environment &amp; neurodiversity acceptance.<\/p>\n<h3>Intimate spaces<\/h3>\n<ul>\n<li>Smaller and quieter spaces improve interaction.<\/li>\n<li>Fewer people can help build relationships.<\/li>\n<\/ul>\n<p>&#8220;I think on a one-to-one basis. It allows me to be more personal and open with that person.&#8221;<\/p>\n<h3>Support needs<\/h3>\n<ul>\n<li>Clubs related to activity or interests.<\/li>\n<li>Support with communication barriers.<\/li>\n<li>Sense of belonging.<\/li>\n<li>Familiar format.<\/li>\n<\/ul>\n<p>&#8220;If it was a club that attracted a more specific crowd with specific interests I would have known I&#8217;d be guaranteed to meet people with very similar interests to mine.&#8221;<\/p>\n<h3>Autistic friends<\/h3>\n<ul>\n<li>Neurodiversity in the group is important.<\/li>\n<li>Not necessarily all autistic people.<\/li>\n<li>Shouldn&#8217;t be forced.<\/li>\n<\/ul>\n<p>&#8220;I didn&#8217;t meet another autistic woman until six months ago, like I&#8217;ve never even come across one before.&#8221;<\/p>\n<h3>Setting up a group<\/h3>\n<ul>\n<li>Collaborative autistic working (young people).<\/li>\n<li>Community priority topics.<\/li>\n<li>Online options.<\/li>\n<li>Training to group providers.<\/li>\n<\/ul>\n<p>&#8220;Having neurodiverse people involved in writing, presenting and any other part of the training process possible would be really good.&#8221;<\/p>\n<h2>What next?<strong><br \/><\/strong><\/h2>\n<p>Autistic young people in this PPIE project showed overwhelming support for the development of autism-affirmative training in schools &amp; co-produced resources aimed at this group. They also provided important specific detail to guide the development of the programme, for example, encouraging teachers to establish groups around shared interests\/activities with time for natural but supported interactions &amp; relationships, hosted in small &amp; quiet spaces. It indicates that the autistic community prioritise the development of knowledge &amp; understanding of neurodiversity in teaching staff, parents, &amp; other students. It suggests that this should include raising awareness of how friendships differ for autistic people &amp; how these light-touch friendships &amp; minimal interactions might be best supported.<\/p>\n<p>This PPIE project demonstrates the importance of including autistic young people\u2019s opinions &amp; experiences in developing clinical materials. It ensures the programme will be more acceptable &amp; applicable in line with general principles of co-production.<\/p>\n<p>These findings have been presented to Manchester Foundation Trust, &amp; will directly inform the development of a training package for teaching staff. The training package will create a supportive group for autistic high school students promoting acceptance, positive self-esteem, interactions, &amp; relationships. The resulting package will be trialled &amp; subjected to critical analysis using clinical research methods. The longer-term aim is to provide an evidence-based programme for working with this under-resourced group of autistic young people.<\/p>\n<p>[\/et_pb_text][et_pb_divider _builder_version=&#8221;3.17.6&#8243; \/][et_pb_text admin_label=&#8221;Text: References&#8221; _builder_version=&#8221;3.17.6&#8243;]<\/p>\n<h2>References<\/h2>\n<p>(1) Buhrmester, D. (1990). Intimacy of friendship, interpersonal competence, and adjustment during preadolescence and adolescence. <em>Child Development<\/em>, 61, 1101\u20131111.<\/p>\n<p>(2) Capps, L., Sigman, M., &amp; Yirmiya, N. (1996). Self-competence and emotional understanding in high-functioning children with autism. <em>Development and Psychopathology,<\/em> 7, 137\u2013149.<\/p>\n<p>(3) Crompton, C. J., Hallett, S., Ropar, D., Flynn, E., &amp; Fletcher-Watson, S. (2020). \u2018I never realised everybody felt as happy as I do when I am around autistic people\u2019: A thematic analysis of autistic adults\u2019 relationships with autistic and neurotypical friends and family. <em>Autism,<\/em> 24(6), 1438-1448.<\/p>\n<p>(4) APA (2022). Diagnostic Criteria for 299.0 Autism Spectrum Disorder. Retrieved from <a href=\"https:\/\/www.cdc.gov\/ncbddd\/autism\/hcp-dsm.html\">https:\/\/www.cdc.gov\/ncbddd\/autism\/hcp-dsm.html<\/a>.<\/p>\n<p>(5) Farr, M., Davies, P., Andrews, H., Bagnall, D., Brangan, E., &amp; Davies, R. (2021). Co-producing knowledge in health and social care research: reflections on the challenges and ways to enable more equal relationships. <em>Humanities and Social Sciences Communications<\/em>, 8, 105.<\/p>\n<p>(6) Kapp, S. (2020). \u201cIntroduction,\u201d in <em>Autistic Community and the Neurodiversity Movement: Stories from the Frontline<\/em>, ed S. Kapp (Singapore: Springer Nature), 1\u201319. doi: 10.1007\/978-981-13-8437-0.<\/p>\n<p>(7) Marriage, K. J., Gordon, V., &amp; Brand, L. (1995). A social skills group for boys with Asperger\u2019s syndrome. <em>The Australian and New Zealand Journal of Psychiatry<\/em>, 29, 58\u201362.<\/p>\n<p>(8) Milton, D., &amp; Sims, T. (2016). How is a sense of well-being and belonging constructed in the accounts of autistic adults? <em>Disability &amp; Society<\/em>, 31(4), 520\u2013534. <a href=\"https:\/\/doi.org\/10.1080\/09687599.2016.1186529\">https:\/\/doi.org\/10.1080\/09687599.2016.1186529<\/a>.<\/p>\n<p>(9) National Autistic Society. (2022). What is Autism? Retrieved from <a href=\"https:\/\/www.autism.org.uk\/advice-and-guidance\/what-is-autism\">https:\/\/www.autism.org.uk\/advice-and-guidance\/what-is-autism<\/a>.<\/p>\n<p>(10) Williams, G. L., Wharton, T., &amp; Jagoe, C. (2021). Mutual (mis) understanding: Reframing autistic pragmatic \u201cimpairments\u201d using relevance theory. <em>Frontiers in Psychology<\/em>, 12, 616664.<\/p>\n<p>[\/et_pb_text][et_pb_post_nav _builder_version=&#8221;3.0.106&#8243; in_same_term=&#8221;off&#8221; show_prev=&#8221;on&#8221; show_next=&#8221;on&#8221; prev_text=&#8221;Previous&#8221; next_text=&#8221;Next&#8221; locked=&#8221;on&#8221; parent_locked=&#8221;off&#8221; \/][et_pb_comments _builder_version=&#8221;3.0.106&#8243; show_avatar=&#8221;on&#8221; show_reply=&#8221;on&#8221; show_count=&#8221;on&#8221; background_layout=&#8221;light&#8221; header_font_size_tablet=&#8221;51&#8243; header_line_height_tablet=&#8221;2&#8243; custom_button=&#8221;on&#8221; button_icon_placement=&#8221;right&#8221; button_text_color=&#8221;#ffffff&#8221; button_use_icon=&#8221;off&#8221; locked=&#8221;on&#8221; parent_locked=&#8221;off&#8221; button_text_size__hover_enabled=&#8221;off&#8221; button_text_size__hover=&#8221;null&#8221; button_one_text_size__hover_enabled=&#8221;off&#8221; 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Language Therapy Team, Manchester NHS Foundation Trust (MFT)BackgroundA Patient &amp; Public Involvement &amp; Engagement (PPIE) projectAutism is a common form of neurodiversity (Kapp, 2020), typified by differences [&hellip;]<\/p>\n","protected":false},"author":11,"featured_media":1499,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","_exactmetrics_skip_tracking":false,"footnotes":""},"categories":[1],"tags":[],"class_list":["post-1494","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorised"],"_links":{"self":[{"href":"https:\/\/sites.manchester.ac.uk\/autism-at-manchester\/wp-json\/wp\/v2\/posts\/1494","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/sites.manchester.ac.uk\/autism-at-manchester\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/sites.manchester.ac.uk\/autism-at-manchester\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/sites.manchester.ac.uk\/autism-at-manchester\/wp-json\/wp\/v2\/users\/11"}],"replies":[{"embeddable":true,"href":"https:\/\/sites.manchester.ac.uk\/autism-at-manchester\/wp-json\/wp\/v2\/comments?post=1494"}],"version-history":[{"count":6,"href":"https:\/\/sites.manchester.ac.uk\/autism-at-manchester\/wp-json\/wp\/v2\/posts\/1494\/revisions"}],"predecessor-version":[{"id":1504,"href":"https:\/\/sites.manchester.ac.uk\/autism-at-manchester\/wp-json\/wp\/v2\/posts\/1494\/revisions\/1504"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/sites.manchester.ac.uk\/autism-at-manchester\/wp-json\/wp\/v2\/media\/1499"}],"wp:attachment":[{"href":"https:\/\/sites.manchester.ac.uk\/autism-at-manchester\/wp-json\/wp\/v2\/media?parent=1494"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/sites.manchester.ac.uk\/autism-at-manchester\/wp-json\/wp\/v2\/categories?post=1494"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/sites.manchester.ac.uk\/autism-at-manchester\/wp-json\/wp\/v2\/tags?post=1494"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}