{"id":1488,"date":"2022-05-25T11:06:01","date_gmt":"2022-05-25T10:06:01","guid":{"rendered":"https:\/\/sites.manchester.ac.uk\/cos-speech\/?p=1488"},"modified":"2022-06-07T11:18:25","modified_gmt":"2022-06-07T10:18:25","slug":"working-together-to-help-measure-dysarthria","status":"publish","type":"post","link":"https:\/\/sites.manchester.ac.uk\/cos-speech\/2022\/05\/25\/working-together-to-help-measure-dysarthria\/","title":{"rendered":"Working together to help measure dysarthria"},"content":{"rendered":"

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Annette Dancer is a stroke survivor. Here, she explains what’s happening to ensure the views of people with dysarthria are considered in research projects.<\/p>\n

STROKE – A benign word meaning gentle and loving caresses.<\/p>\n

STROKE – A devastating word meaning acquired brain injury and life changing disabilities.<\/p>\n

STROKE – An oxymoron if ever there was one.<\/p>\n

Not that I can say \u2018oxymoron\u2019, because stroke left me with the tongue-tying condition of dysarthria (difficulty forming<\/em> words).\u00a0<\/p>\n

(Rhetorical question – Why are speech conditions given unpronounceable names?)<\/p>\n

At the moment, there is no \u2018across the board\u2019 method for assessing dysarthria.<\/p>\n

However, there’s a collaboration between researchers in Britain and Australia with the joint aim of developing a set of core outcomes, which will become the standard of how dysarthria can be measured internationally.<\/p>\n

As part of this collaboration, the British team have brought together researchers and people with dysarthria to create HEARD (Healing, Empowerment and Recovery from Dysarthria).<\/p>\n

HEARD is working to support this research to make sure that what is measured in research and clinical practice considers what is important to people with dysarthria.<\/p>\n

This may include the physical, psychological and social aspects of life for people with dysarthria.<\/p>\n

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Related<\/h1>\n

Related posts:<\/h3>
<\/div>
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<\/div>

Poem: Let's Sing and Dance Until We Drop (or Dancing with Dysarthria)<\/h2><\/div><\/div><\/a>
<\/div>

HEARD group members speak at UK Stroke Forum<\/h2><\/div><\/div><\/a><\/div>
<\/div><\/div><\/div>\n

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