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On this page:<\/p>\n
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- Involving patient and carer partners in research<\/a><\/li>\n
- Engaging the public with research<\/a><\/li>\n
- Blogs and awards<\/a><\/li>\n
- Projects and publications<\/a><\/li>\n
- Resources<\/a><\/li>\n
- Help in a crisis<\/a><\/li>\n
- Contact us<\/a><\/li>\n<\/ol>\n
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Involving patient and carer partners in research<\/h2>\n
Patient and public involvement and engagement (PPIE) in mental health research is an active partnership between patients, carers, and researchers. The aim of our PPIE is to research areas of importance: asking the right questions to the right people and shaping our research for better outcomes for mental health patients and carers.<\/p>\n
Our public contributors are involved throughout the research cycle, from funding applications and the design of research, through to interpretation of results and dissemination.<\/p>\n
Involvement might include contributors at any of the following stages:<\/p>\n
- \n
- identifying areas for research<\/li>\n
- reviewing literature<\/li>\n
- helping to determine research questions, aims and hypotheses<\/li>\n
- study design and methodology<\/li>\n
- participant or data sample<\/li>\n
- collecting data<\/li>\n
- processing, coding, analysing and interpreting data<\/li>\n
- reporting research<\/li>\n
- dissemination or sharing of results<\/li>\n<\/ul>\n
The group activities are often via meetings and individual project tasks. Meetings may be online or in person and contributors are encouraged to connect in the best way for them.<\/p>\n
Wellbeing<\/h3>\n
At the core of our work is a focus on wellbeing. We work to a set of ground rules and have a co-designed wellbeing plan (available in the resource section). We encourage every contributor to complete the wellbeing plan.<\/p>\n
We focus on building relationships and creating a safe space for all people to contribute. We have regular wellbeing check-ins and debriefs during and following tasks. We acknowledge that all people have their own unique experiences and invite contributors to share what they feel comfortable with and, importantly, only when they feel comfortable. Please see the toolkit available in the resource section for more information.<\/p>\n
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“All work puts the contributors first. Because of this, the researchers have built up trust, so that the many avenues of research can produce well-founded studies through the plethora of knowledge and experiences our contributors have shared.”<\/em><\/p>\n
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Jonathan \/ Public contributor<\/strong><\/p>\n<\/blockquote>\n
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Together with researchers, members of MS4MH-R support how our research and PPIE strategy is communicated to the public.<\/p>\n
MS4MH-R members have spoken about their involvement and provided advice and insights for those looking to engage marginalised people in research at the Greater Manchester PSTRC annual symposium on patient safety, mental health and COVID-19.<\/p>\n
Members have also co-produced two art and photography engagement exhibitions for World Suicide Prevention Day:<\/p>\n
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- Seeds of Hope at Manchester Town Hall<\/a> (2019)<\/li>\n
- Hope during the COVID-19 pandemic<\/a> (online exhibition) (2020)<\/li>\n<\/ul>\n
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From the World Suicide Prevention Day 2020 photo exhibit: Hope during the COVID-19 pandemic: perspectives from people with personal experience of self-harm, suicide and mental health.<\/strong><\/p><\/div>\n
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Members of MS4MH-R and researchers write blog posts and do engagement events about mental health that bring lived experience and scientific expertise together.<\/p>\n
Blogs<\/h3>\n
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- PPIE: a movement beyond a term<\/a> (Chris Frederick,NIHR GM PSRC blog)<\/li>\n
- My first keynote as a lived experience contributor<\/a> (Elizabeth Monaghan, NIHR GM PSRC blog)<\/li>\n
- How to generate inclusive and diverse mental health patient and public involvement and engagement<\/a> (Greater Manchester PSTRC blog)<\/li>\n
- What hope means during the COVID-19 pandemic \u2013 a virtual exhibition to mark World Suicide Prevention Day<\/a> (Greater Manchester PSTRC blog)<\/li>\n
- Helping mental health services rise to the challenge of COVID-19<\/a> (NIHR blog)<\/li>\n
- Suicide prevention, mental health, and why hope is so important during the COVID-19 pandemic<\/a> (Greater Manchester PSTRC blog)<\/li>\n<\/ul>\n
Engagement recordings (PPIE)<\/h3>\n
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- Elizabeth Monaghan and Leah Quinlivan: PPIE in research and quality improvement<\/a> (Improving Community Services for Self-harm programme<\/a>)<\/li>\n
- Jav Rehman: Including people from diverse communities in research and practice\u00a0<\/a><\/li>\n
- Leah Quinlivan: PPIE in self-harm and suicide prevention<\/a> (toolkit launch)<\/li>\n
- Leah Quinlivan: PPIE toolkit overview<\/a> (toolkit launch)<\/li>\n
- Elizabeth Monaghan: PPIE: A Public contributor perspective<\/a> (toolkit launch)<\/li>\n
- Jav Rehman: Cultural competence in PPIE<\/a> (toolkit launch)<\/li>\n
- Chris Frederick: PPIE thoughts and perspectives<\/a>\u00a0(toolkit launch)<\/li>\n<\/ul>\n
Awards\u00a0<\/h3>\n
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- Outstanding Public Engagement Initiative: Making a Difference Awards, University of Manchester, (shortlisted, 2025)<\/li>\n
- Excellence Awards for Inspiring Inclusive Involvement, NIHR CRN Greater Manchester Evening of Excellence awards for Inspiring Inclusive Involvement (2021).<\/li>\n
- Highly commended in the Outstanding contribution to Patient and Public Involvement and Engagement category of the Making a Difference Awards at The University of Manchester (2019).<\/li>\n
- Nominated in the NIHR Greater Manchester Clinical Research Awards for Best Practice Engagement Contribution.<\/li>\n<\/ul>\n
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MS4MH-R has been involved in the following research projects and publications.<\/p>\n
Projects<\/h3>\n
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- Knowledge Support System for Self-harm in Primary Care\u00a0<\/a><\/li>\n
- Culture of Care Programme\u00a0<\/a><\/li>\n
- NCISH<\/a><\/li>\n
- Preventing self-harm and suicide theme, National Institute of Health and Care, Greater Manchester Patient Safety Research Collaboration\u00a0\u00a0<\/a><\/li>\n
- Mental health assessments and psychological therapies following self-harm<\/a> (MhAPT)<\/li>\n
- Effective family involvement to improve patient wellbeing and safety<\/a><\/li>\n<\/ul>\n
Selected publications<\/h3>\n
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- Quinlivan, L. (2023).\u00a0 Accessing Psychological therapies following self-harm: qualitative survey of patient experiences and views on improving practice, BJPsych Open, 9: e62.\u00a0<\/a><\/li>\n
- Quinlivan, L. (2023). Liaison psychiatry practitioners’ views on accessing aftercare and psychological therapies for patients who present to hospital following self-harm: multisite interview study. BJPsych Open, 2023, 9: e34.\u00a0<\/a><\/li>\n
- Quinlivan, L. (2021). ‘Relieved to be seen’ – patient and carer experiences of psychosocial assessment in the emergency department following self-harm: qualitative analysis of 102 free-text survey responses, BMJ Open, 11; e044434:<\/a><\/li>\n
- Quinlivan et al. (2021). ‘Wasn’t offered one, too poorly to ask for one’ \u2013 Reasons why some patients do not receive a psychosocial assessment following self-harm: Qualitative patient and carer survey,\u00a0Australian & New Zealand Journal of Psychiatry, 2021, 56, 398-407.<\/a><\/li>\n
- Adeyemi, A., Sanders, C., Ong, BN., Howells, K., Quinlivan, L., Gorman, L., Giles, S., Amp, M., Monaghan, E., Naseem, S., Pearson, A., Cheraghi-Sohi, S (2022). Challenges and adaptations to public involvement with marginalised groups during the COVID-19 pandemic: commentary with illustrative case studies in the context of patient safety research. Research Involvement and Engagement, 8,13.<\/a>\u00a0<\/li>\n
- Littlewood, D.L., Quinlivan, L., Steeg, S., Bennett, C., Bickley, H., Rodway, C., Webb, RT., Kapur, N. (2019). Evaluating the impact of patient and carer involvement in suicide and self-harm research: A mixed-methods, longitudinal study protocol, Health Expectations, 24,47-53.<\/a><\/li>\n<\/ul>\n
View publication<\/a><\/p>\n
Related projects and centres<\/h3>\n
MS4MH-R members work with different researchers throughout the Greater Manchester PSTRC and the Centre for Mental Health and Safety.<\/p>\n
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- National Institute for Health and Care Research, Greater Manchester Patient Safety Research Collaboration (NIHR GM PSRC)<\/a><\/li>\n
- Greater Manchester PSTRC Mental Health Theme<\/a><\/li>\n
- National Confidential Inquiry into Suicide and Safety in Mental Health<\/a><\/li>\n
- The Manchester Self-Harm Project<\/a><\/li>\n
- Centre for Mental Health and Safety<\/a><\/li>\n<\/ul>\n
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Working with people with lived experience of mental health, suicide and self-harm and their carers brings additional insights and considerations for PPIE.<\/p>\n
Through our experience of mental health PPIE, we have co-developed toolkits providing free resources for researchers, healthcare staff and public contributors for carrying out PPIE in sensitive research areas.<\/p>\n
Please use the citation in the toolkit and guide, should you choose to use any of the resources.<\/p>\n
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- Patient and public involvement in self-harm prevention research: Shared Learning Toolkit<\/a>\u00a0<\/li>\n
- Patient and public involvement in self-harm and suicide prevention research: Public contributor guide<\/a><\/li>\n
- Patient and public involvement in self-harm and suicide prevention research: Easy read infographic<\/a>\u00a0<\/li>\n
- Working together\/terms of reference<\/a><\/li>\n
- Public contributor wellbeing plan<\/a><\/li>\n
- Planning PPIE for researchers<\/a><\/li>\n
- Media guidelines [see toolkit)<\/li>\n<\/ul>\n
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MS4MH-R is set up to provide a lived\/living experience perspective in research. We do not provide treatment, advice or mental health care for those experiencing crisis.<\/p>\n
If you are in crisis or feeling suicidal, we urge you to seek help from your GP or local hospital emergency department, through a telephone helpline service, or by discussing your problems with a friend or colleague.<\/p>\n
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Information and support services<\/h3>\n
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Emotional support, open to anyone. If you need a response immediately, it is best to call Samaritans on the phone. This number is FREE to call.<\/p>\n
Tel: 116 123 (UK), available 24 hours a day, every day of the year
Email: jo@samaritans.org<\/a><\/p>\nVisit Samaritans website<\/a><\/p>\n
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SANEline is a national out-of-hours mental health helpline offering specialist emotional support, guidance and information to anyone affected by mental illness, including family, friends and carers.<\/p>\n
Tel: 0300 304 7000, available 4.30pm-10.30pm, every day of the year.<\/p>\n
Visit SANEline website<\/a><\/p>\n
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The Rethink Mental Illness Advice Service offers practical help on issues such as the Mental Health Act, community care, welfare benefits, debt and carers rights.<\/p>\n
It also offers general help on living with mental illness, medication and care.<\/p>\n
Tel: 0300 5000 927, available 9:30am-4pm, Monday to Friday<\/p>\n
Visit Rethink website<\/a><\/p>\n
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HOPELINEUK is a specialist telephone service staffed by trained professionals.<\/p>\n
It gives non-judgemental support, practical advice and information to children, teenagers and young people up to the age of 35 who are worried about how they are feeling, and to anyone who is concerned about a young person.<\/p>\n
Tel: 0800 068 41 41, available 10am-10pm weekdays, 2pm-10pm weekends and bank holidays
Text: 07786209697
Email: pat@papyrus-uk.org<\/a><\/p>\nVisit HOPELINEUK website<\/a><\/p>\n
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Tel: 111, available 24 hours a day, 365 days a year<\/p>\n
Visit NHS 111 website<\/a><\/p>\n
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The Hub of Hope is a first of its kind national mental health database.<\/p>\n
It brings together large and small organisations and charities that offer mental health advice and support across the country.<\/p>\n
The Hub of Hope is available via the internet or as an app via the Apple or Google Play store.<\/p>\n
Visit Hub of Hope website<\/a><\/p>\n
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Shout is a 24-hour text message support service.<\/p>\n
Text: 85258<\/p>\n
Visit Shout website<\/a><\/p>\n
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Tel: 0800 58 58 58 (5pm-midnight, 365 days a year)<\/p>\n
Visit CALM website<\/a><\/p>\n
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If you would like to find out more about patient and public involvement and engagement, or you would like to join the group, please contact Leah. She will be happy to chat on the phone, by email or in person.<\/p>\n
If you do wish to join any of the group\u2019s in-person meetings, we can arrange to meet you shortly beforehand and bring you to the meeting room.
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Dr Leah Quinlivan (Research Fellow)
Email: leah.quinlivan@manchester.ac.uk<\/a><\/p>\n<\/p>\n
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- Patient and public involvement in self-harm and suicide prevention research: Public contributor guide<\/a><\/li>\n
- Greater Manchester PSTRC Mental Health Theme<\/a><\/li>\n
- Quinlivan, L. (2023). Liaison psychiatry practitioners’ views on accessing aftercare and psychological therapies for patients who present to hospital following self-harm: multisite interview study. BJPsych Open, 2023, 9: e34.\u00a0<\/a><\/li>\n
- Culture of Care Programme\u00a0<\/a><\/li>\n
- Knowledge Support System for Self-harm in Primary Care\u00a0<\/a><\/li>\n
- Jav Rehman: Including people from diverse communities in research and practice\u00a0<\/a><\/li>\n
- My first keynote as a lived experience contributor<\/a> (Elizabeth Monaghan, NIHR GM PSRC blog)<\/li>\n
- Hope during the COVID-19 pandemic<\/a> (online exhibition) (2020)<\/li>\n<\/ul>\n
- Seeds of Hope at Manchester Town Hall<\/a> (2019)<\/li>\n
- Engaging the public with research<\/a><\/li>\n
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