{"id":1505,"date":"2023-01-18T12:35:00","date_gmt":"2023-01-18T12:35:00","guid":{"rendered":"https:\/\/sites.manchester.ac.uk\/rapid-rt\/?page_id=1505"},"modified":"2025-10-07T10:45:51","modified_gmt":"2025-10-07T09:45:51","slug":"information-for-participants","status":"publish","type":"page","link":"https:\/\/sites.manchester.ac.uk\/rapid-rt\/information-for-participants\/","title":{"rendered":"Information for participants"},"content":{"rendered":"<p>[et_pb_section bb_built=&#8221;1&#8243; admin_label=&#8221;section&#8221; fullwidth=&#8221;on&#8221; next_background_color=&#8221;#000000&#8243; global_module=&#8221;322&#8243;][et_pb_fullwidth_menu global_parent=&#8221;322&#8243; _builder_version=&#8221;3.0.106&#8243; menu_id=&#8221;7&#8243; submenu_direction=&#8221;downwards&#8221; fullwidth_menu=&#8221;off&#8221; background_layout=&#8221;dark&#8221; module_class=&#8221;main-navigation&#8221; \/][\/et_pb_section][et_pb_section bb_built=&#8221;1&#8243; _builder_version=&#8221;3.0.74&#8243; custom_padding=&#8221;||0px|&#8221; transparent_background=&#8221;off&#8221; prev_background_color=&#8221;#000000&#8243; next_background_color=&#8221;#000000&#8243;][et_pb_row custom_padding=&#8221;||0px|&#8221; custom_margin=&#8221;||0px|&#8221; parallax_method_1=&#8221;off&#8221; module_class=&#8221;breadcrumbs-row&#8221; _builder_version=&#8221;3.0.47&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221;][et_pb_column type=&#8221;4_4&#8243;][et_pb_text admin_label=&#8221;Breadcrumbs (do not remove)&#8221; module_class=&#8221;breadcrumbs&#8221; _builder_version=&#8221;3.0.87&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; module_alignment=&#8221;left&#8221; custom_css_main_element=&#8221;border-bottom: 1px solid #ececed;&#8221; use_border_color=&#8221;off&#8221; border_color=&#8221;#ffffff&#8221; border_style=&#8221;solid&#8221;]<\/p>\n<span><span><a href=\"https:\/\/sites.manchester.ac.uk\/rapid-rt\/\">RAPID-RT<\/a><\/span><\/span>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section bb_built=&#8221;1&#8243; use_custom_gutter=&#8221;on&#8221; gutter_width=&#8221;2&#8243; specialty=&#8221;on&#8221; parallax_method_1=&#8221;off&#8221; parallax_method_2=&#8221;off&#8221; _builder_version=&#8221;3.0.74&#8243; transparent_background=&#8221;off&#8221; prev_background_color=&#8221;#000000&#8243; next_background_color=&#8221;#1d1d1d&#8221;][et_pb_column type=&#8221;1_3&#8243;][et_pb_sidebar admin_label=&#8221;Left Nav Sidebar&#8221; area=&#8221;et_pb_widget_area_1&#8243; show_border=&#8221;off&#8221; module_id=&#8221;left-nav-menu&#8221; _builder_version=&#8221;3.0.74&#8243; remove_border=&#8221;on&#8221; \/][\/et_pb_column][et_pb_column type=&#8221;2_3&#8243; specialty_columns=&#8221;2&#8243;][et_pb_row_inner admin_label=&#8221;Row&#8221; _builder_version=&#8221;3.0.47&#8243;][et_pb_column_inner type=&#8221;4_4&#8243; saved_specialty_column_type=&#8221;2_3&#8243;][et_pb_text _builder_version=&#8221;3.17.6&#8243;]<\/p>\n<h1>Would you like to be involved in our research?<\/h1>\n<p>We need patients, carers and members of the public to help us shape and participate in our research programme. If you would like to get involved there are a number of ways you can join in.<\/p>\n<p>Please contact\u00a0us at <a href=\"mailto:rapid-rt@manchester.ac.uk\">rapid-rt@manchester.ac.uk<\/a>\u00a0if you would like to be involved.<\/p>\n<h2>Current opportunities<\/h2>\n<h3>Focus group on when should a change to radiotherapy treatments be measured using rapid-learning?<\/h3>\n<p><em>Year 3-4, January 2025<\/em><\/p>\n<p>The aim of these focus groups is to ask patients, their supporters, and the public, when they think it is acceptable to use patients\u2019 data in a process known as \u2018Rapid Learning\u2019 to measure how effective changes to medical treatments have been.<\/p>\n<p>The results from this research will be published and used to inform our research further.<\/p>\n<h4>What is Rapid-Learning and why is it useful?<\/h4>\n<p>When doctors think a change would improve a treatment, they will change the treatment all patients receive from that date onwards.\u00a0 However, the effect of these changes is not always easy to measure.\u00a0 When changes are made to treatments for all patients, rapid Learning could be used to compare the old treatment with the new treatment.\u00a0It does this by using data that is already collected during routine care about patient outcomes, such as side effects and survival rates.<\/p>\n<p>Measuring the effect of the change in this way, can help to prove whether changes made to treatments have actually improved outcomes for more patients.\u00a0 This can help doctors decide what other changes would improve the treatment further.\u00a0 It can also be used to show other hospitals what changes they should make to treatments for their patients.<\/p>\n<p>In the focus groups we will explain what Rapid Learning is and how it could be used to improve radiotherapy treatments.\u00a0 We would love to hear your views on:<\/p>\n<ul>\n<li>Whether you think this is acceptable?<\/li>\n<li>How you think we should talk to patients about their data being used in this way?<\/li>\n<\/ul>\n<p>You don\u2019t need any previous experience of health research to take part, just be happy to learn about radiotherapy and share your views.<\/p>\n<h4>We are looking for:<\/h4>\n<ul>\n<li>People who have received radiotherapy as part of their cancer treatment<\/li>\n<li>People who have supported a friend or family member receiving radiotherapy during their cancer treatment<\/li>\n<li>The general public with an interest in improving healthcare<\/li>\n<\/ul>\n<p>You will be invited to take part in one of three focus group sessions, which will take place in central Manchester at:<\/p>\n<p><strong><b>Tuesday 14<sup>th<\/sup> January 2025 <\/b><\/strong><\/p>\n<p><strong><b>Tuesday 21<sup>st<\/sup> January 2025<\/b><\/strong><\/p>\n<p><strong><b>Tuesday 28<sup>th<\/sup> January 2025<\/b><\/strong><\/p>\n<p>The session will be <em>in-person<\/em> and you will receive a <strong>\u00a375 love-to-shop voucher<\/strong> to reimburse you for your time.<\/p>\n<p>We are committed to making our opportunities as inclusive and accessible as possible. If there is anything that we can do to enable you to take part, please let us know.<\/p>\n<p><strong><b>If you are interested in finding out more, please\u00a0<a href=\"http:\/\/www.qualtrics.manchester.ac.uk\/jfe\/form\/SV_bwQjZodXu7nDGaa\">register your interest<\/a>.<\/b><\/strong><\/p>\n<p><strong><b>Or please get in touch by emailing the research team at <\/b><a href=\"mailto:rapid-rt@manchester.ac.uk\">rapid-rt@manchester.ac.uk<\/a><\/strong><\/p>\n<p>We&#8217;ll aim to get back to you ASAP with more information and discuss your interest in the opportunity. Please note that our team are taking a well-earned break over the Christmas period (20<sup>th<\/sup> December &#8211; 6<sup>th<\/sup> January).<\/p>\n<p>Further information for participants can be found here:<\/p>\n<ul>\n<li><a title=\"Rapid-learning focus group PIS\" href=\"https:\/\/documents.manchester.ac.uk\/display.aspx?DocID=74860\">Participant Information Sheet<\/a><\/li>\n<li><a href=\"https:\/\/documents.manchester.ac.uk\/display.aspx?DocID=74861\">Informed consent form<\/a><\/li>\n<\/ul>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;3.17.6&#8243;]<\/p>\n<p>Please expand the following sections if you&#8217;d like to see how we are engaging patients and members of the public in our research.<\/p>\n<p>[\/et_pb_text][et_pb_divider _builder_version=&#8221;3.17.6&#8243; \/][et_pb_accordion _builder_version=&#8221;3.17.6&#8243;][et_pb_accordion_item title=&#8221;RAPID-RT: a study using patients&#8217; routine data to improve care&#8221; open=&#8221;on&#8221; _builder_version=&#8221;3.17.6&#8243; title_text_shadow_horizontal_length=&#8221;0em&#8221; title_text_shadow_vertical_length=&#8221;0em&#8221; title_text_shadow_blur_strength=&#8221;0em&#8221; body_text_shadow_horizontal_length=&#8221;0em&#8221; body_text_shadow_vertical_length=&#8221;0em&#8221; body_text_shadow_blur_strength=&#8221;0em&#8221;]<\/p>\n<p><em>Year 2-5, 2023-2027<\/em><\/p>\n<p>Anonymised data from all Christie patients with stage 1 to 3 lung cancer who receive curative-intent radiotherapy during the study period are eligible for inclusion in the RAPID-RT data study. All these patients will have received a radiotherapy that has been targeted to reduce the chance of damage to the heart while maximising damage to the cancer. We hope this change will improve survival of our patients.<\/p>\n<p>Participant information, including information on the opt-out process, is available at the top of this page.<strong>\u00a0<\/strong><\/p>\n<p>Since opening recruitment in April 2023, over 750 patients (as of November 2024) have contributed their data to the RAPID-RT study. We have developed a method to compare patient outcomes pre- and post- the introduction of heart-sparing radiotherapy and we hope to be able to share our results soon on whether this change in treatment has increased patient survival.<\/p>\n<p>The participant information sheet for this study can be found here:\u00a0<\/p>\n<ul>\n<li><a href=\"https:\/\/documents.manchester.ac.uk\/display.aspx?DocID=65246\">RAPID-RT data study<\/a> (PDF)<\/li>\n<\/ul>\n<p>[\/et_pb_accordion_item][et_pb_accordion_item title=&#8221;Interviews with patients and their supporters enrolled on the RAPID-RT data study&#8221; open=&#8221;off&#8221; _builder_version=&#8221;3.17.6&#8243; title_text_shadow_horizontal_length=&#8221;0em&#8221; title_text_shadow_vertical_length=&#8221;0em&#8221; title_text_shadow_blur_strength=&#8221;0em&#8221; body_text_shadow_horizontal_length=&#8221;0em&#8221; body_text_shadow_vertical_length=&#8221;0em&#8221; body_text_shadow_blur_strength=&#8221;0em&#8221;]<\/p>\n<p><em>Year 2, 2023<\/em><\/p>\n<p>We will interview a small number of patients and theirsupporters eligible for inclusion in the RAPID-RT data study and ask their views on their experience of the study.<\/p>\n<p>In particular, we want to understand patients&#8217; experiences and the effectiveness of the opt-out process, both at the time of treatment and six months later.<\/p>\n<p>We have now completed all first round interviews and are in the process of speaking to our participants six months later. Results will be shared soon.<\/p>\n<p>Information for participants can be found here:<\/p>\n<ul>\n<li><a href=\"https:\/\/documents.manchester.ac.uk\/display.aspx?DocID=72477\">Participant Information Sheet<\/a><\/li>\n<li><a href=\"https:\/\/documents.manchester.ac.uk\/display.aspx?DocID=72478\">Supporters Participant Information Sheet<\/a><\/li>\n<\/ul>\n<p>[\/et_pb_accordion_item][et_pb_accordion_item title=&#8221;Delphi study on the usefulness of the EQ-5D for radiotherapy patients&#8221; open=&#8221;off&#8221; _builder_version=&#8221;3.17.6&#8243; title_text_shadow_horizontal_length=&#8221;0em&#8221; title_text_shadow_vertical_length=&#8221;0em&#8221; title_text_shadow_blur_strength=&#8221;0em&#8221; body_text_shadow_horizontal_length=&#8221;0em&#8221; body_text_shadow_vertical_length=&#8221;0em&#8221; body_text_shadow_blur_strength=&#8221;0em&#8221;]<\/p>\n<p><em>Year 2, 2023<\/em><\/p>\n<p>We will invite patients with experience of radiotherapy to participate in a survey to explore how well the EQ-5D-5 questionnaire (patient reported outcome measures) captures the impact of having radiotherapy.<\/p>\n<p>Round 1 of the survey has now closed and we will be in contact with all those who participated with round 2 and round 3 soon.\u00a0<\/p>\n<p>[\/et_pb_accordion_item][\/et_pb_accordion][et_pb_text _builder_version=&#8221;3.17.6&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; module_alignment=&#8221;left&#8221; use_border_color=&#8221;off&#8221;]<\/p>\n<p>View a full <a href=\"https:\/\/sites.manchester.ac.uk\/rapid-rt\/about-rapid-rt\/#timeline\">timeline of the project<\/a>.<\/p>\n<p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][\/et_pb_column][\/et_pb_section][et_pb_section bb_built=&#8221;1&#8243; admin_label=&#8221;Connect Title&#8221; custom_padding=&#8221;0px||0px|&#8221; _builder_version=&#8221;3.0.90&#8243; background_color=&#8221;#1d1d1d&#8221; module_class=&#8221;footer-section&#8221; prev_background_color=&#8221;#ffffff&#8221; global_module=&#8221;380&#8243;][et_pb_row admin_label=&#8221;row&#8221; global_parent=&#8221;380&#8243; locked=&#8221;off&#8221; allow_player_pause=&#8221;off&#8221; parallax=&#8221;off&#8221; parallax_method=&#8221;on&#8221; parallax_1=&#8221;off&#8221; parallax_method_1=&#8221;off&#8221; parallax_2=&#8221;off&#8221; parallax_method_2=&#8221;off&#8221; parallax_3=&#8221;off&#8221; parallax_method_3=&#8221;off&#8221; make_fullwidth=&#8221;off&#8221; use_custom_width=&#8221;off&#8221; width_unit=&#8221;on&#8221; use_custom_gutter=&#8221;off&#8221; make_equal=&#8221;off&#8221; module_id=&#8221;footer-row&#8221; _builder_version=&#8221;3.0.89&#8243;][et_pb_column type=&#8221;1_3&#8243;][et_pb_text admin_label=&#8221;Contact Us Title&#8221; global_parent=&#8221;380&#8243; background_layout=&#8221;dark&#8221; text_text_color=&#8221;#ffffff&#8221; parent_locked=&#8221;off&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; background_size=&#8221;initial&#8221;]<\/p>\n<h4>Contact Us<\/h4>\n<p>[\/et_pb_text][et_pb_text admin_label=&#8221;Contact Us&#8221; global_parent=&#8221;380&#8243; text_text_color=&#8221;#aaaaaa&#8221; parent_locked=&#8221;off&#8221; background_layout=&#8221;light&#8221; text_orientation=&#8221;left&#8221; use_border_color=&#8221;off&#8221; border_color=&#8221;#ffffff&#8221; border_style=&#8221;solid&#8221; module_class=&#8221;contact-us&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; background_size=&#8221;initial&#8221;]<\/p>\n<p>+44 (0) 161 306 6000<\/p>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=&#8221;1_3&#8243;][et_pb_text admin_label=&#8221;Find Us Title&#8221; global_parent=&#8221;380&#8243; background_layout=&#8221;dark&#8221; text_text_color=&#8221;#ffffff&#8221; parent_locked=&#8221;off&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; background_size=&#8221;initial&#8221;]<\/p>\n<h4>Find Us<\/h4>\n<p>[\/et_pb_text][et_pb_text admin_label=&#8221;Address&#8221; global_parent=&#8221;380&#8243; background_layout=&#8221;dark&#8221; text_orientation=&#8221;left&#8221; use_border_color=&#8221;off&#8221; border_color=&#8221;#ffffff&#8221; border_style=&#8221;solid&#8221; module_id=&#8221;address&#8221; parent_locked=&#8221;off&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; background_size=&#8221;initial&#8221;]<\/p>\n<p><a href=\"http:\/\/www.manchester.ac.uk\/discover\/maps\/interactive-map\/\">The University of Manchester<br \/>Oxford Rd<br \/>Manchester<br \/>M13 9PL<br \/>UK<\/a><\/p>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=&#8221;1_3&#8243;][et_pb_text admin_label=&#8221;Connect Title&#8221; global_parent=&#8221;380&#8243; background_layout=&#8221;dark&#8221; text_text_color=&#8221;#ffffff&#8221; parent_locked=&#8221;off&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; background_size=&#8221;initial&#8221;]<\/p>\n<h4>Connect With Us<\/h4>\n<p>[\/et_pb_text][et_pb_code admin_label=&#8221;Social Media&#8221; global_parent=&#8221;380&#8243; parent_locked=&#8221;off&#8221; _builder_version=&#8221;3.17.6&#8243;]<\/p>\n<ul class=\"inlineList footer-socialIcons\"><!-- [et_pb_line_break_holder] --><\/p>\n<li><!-- [et_pb_line_break_holder] --> <a href=\"https:\/\/www.facebook.com\/TheUniversityOfManchester\"><!-- [et_pb_line_break_holder] --> <img loading=\"lazy\" decoding=\"async\" src=\"\/\/assets.manchester.ac.uk\/phase1\/templates\/images\/icon-facebook-50.png\" alt=\"Facebook page for The University of Manchester\" width=\"40\" height=\"40\" \/><!-- [et_pb_line_break_holder] --> <\/a><!-- [et_pb_line_break_holder] --><\/li>\n<p><!-- [et_pb_line_break_holder] --><\/p>\n<li><!-- [et_pb_line_break_holder] --> <a href=\"https:\/\/twitter.com\/OfficialUoM\"><!-- [et_pb_line_break_holder] --> <img loading=\"lazy\" decoding=\"async\" src=\"\/\/assets.manchester.ac.uk\/phase1\/templates\/images\/icon-twitter-50.png\" alt=\"Twitter page for The University of Manchester\" width=\"40\" height=\"40\" \/><!-- [et_pb_line_break_holder] --> <\/a><!-- [et_pb_line_break_holder] --><\/li>\n<p><!-- [et_pb_line_break_holder] --><\/p>\n<li><!-- [et_pb_line_break_holder] --> <a href=\"http:\/\/www.youtube.com\/universitymanchester\"><!-- [et_pb_line_break_holder] --> <img loading=\"lazy\" decoding=\"async\" src=\"\/\/assets.manchester.ac.uk\/phase1\/templates\/images\/icon-youtube-50.png\" alt=\"YouTube page for The University of Manchester\" width=\"40\" height=\"40\" \/><!-- [et_pb_line_break_holder] --> <\/a><!-- [et_pb_line_break_holder] --><\/li>\n<p><!-- [et_pb_line_break_holder] --><\/p>\n<li><!-- [et_pb_line_break_holder] --> <a href=\"https:\/\/instagram.com\/officialuom\/\"><!-- [et_pb_line_break_holder] --> <!-- [et_pb_line_break_holder] --> <img loading=\"lazy\" decoding=\"async\" src=\"\/\/assets.manchester.ac.uk\/phase1\/templates\/images\/icon-instagram-50.svg\" alt=\"Instagram page for The University of Manchester\" width=\"40\" height=\"40\" \/><!-- [et_pb_line_break_holder] --> <\/a><!-- [et_pb_line_break_holder] --><\/li>\n<p><!-- [et_pb_line_break_holder] --><\/ul>\n<p>[\/et_pb_code][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"<p><span><span><a href=\"https:\/\/sites.manchester.ac.uk\/rapid-rt\/\">RAPID-RT<\/a><\/span><\/span> Would you like to be involved in our research?We need patients, carers and members of the public to help us shape and participate in our research programme. If you would like to get involved there are a number of ways you can join in.Please contact\u00a0us at rapid-rt@manchester.ac.uk\u00a0if you would like to be involved.Current opportunitiesFocus [&hellip;]<\/p>\n","protected":false},"author":12,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","_exactmetrics_skip_tracking":false,"footnotes":""},"class_list":["post-1505","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/sites.manchester.ac.uk\/rapid-rt\/wp-json\/wp\/v2\/pages\/1505","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/sites.manchester.ac.uk\/rapid-rt\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/sites.manchester.ac.uk\/rapid-rt\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/sites.manchester.ac.uk\/rapid-rt\/wp-json\/wp\/v2\/users\/12"}],"replies":[{"embeddable":true,"href":"https:\/\/sites.manchester.ac.uk\/rapid-rt\/wp-json\/wp\/v2\/comments?post=1505"}],"version-history":[{"count":31,"href":"https:\/\/sites.manchester.ac.uk\/rapid-rt\/wp-json\/wp\/v2\/pages\/1505\/revisions"}],"predecessor-version":[{"id":1790,"href":"https:\/\/sites.manchester.ac.uk\/rapid-rt\/wp-json\/wp\/v2\/pages\/1505\/revisions\/1790"}],"wp:attachment":[{"href":"https:\/\/sites.manchester.ac.uk\/rapid-rt\/wp-json\/wp\/v2\/media?parent=1505"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}