{"id":1694,"date":"2019-12-03T10:57:38","date_gmt":"2019-12-03T10:57:38","guid":{"rendered":"https:\/\/sites.manchester.ac.uk\/reach-asd\/?page_id=1694"},"modified":"2023-07-19T14:02:59","modified_gmt":"2023-07-19T13:02:59","slug":"information-for-parents","status":"publish","type":"page","link":"https:\/\/sites.manchester.ac.uk\/reach-asd\/information-for-parents\/","title":{"rendered":"Information for parents"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; fullwidth=&#8221;on&#8221; admin_label=&#8221;section&#8221; _builder_version=&#8221;3.17.6&#8243;][et_pb_fullwidth_menu menu_id=&#8221;7&#8243; submenu_direction=&#8221;downwards&#8221; fullwidth_menu=&#8221;off&#8221; module_class=&#8221;main-navigation&#8221; _builder_version=&#8221;3.0.106&#8243; background_layout=&#8221;dark&#8221;][\/et_pb_fullwidth_menu][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; module_class=&#8221;header-image-section&#8221; _builder_version=&#8221;3.0.74&#8243; custom_padding=&#8221;0px||0px|&#8221; custom_css_main_element=&#8221;padding-top:0px&#8221; transparent_background=&#8221;off&#8221;][et_pb_row custom_padding=&#8221;||0px|&#8221; custom_margin=&#8221;||0px|&#8221; parallax_method_1=&#8221;off&#8221; module_class=&#8221;header-image&#8221; _builder_version=&#8221;3.0.47&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;3.0.47&#8243; parallax=&#8221;off&#8221; parallax_method=&#8221;off&#8221;][et_pb_image src=&#8221;https:\/\/sites.manchester.ac.uk\/reach-asd\/wp-content\/uploads\/sites\/192\/2019\/07\/mother-reading-to-her-daughter.jpg&#8221; show_bottom_space=&#8221;off&#8221; admin_label=&#8221;Parent reading with child&#8221; _builder_version=&#8221;3.17.6&#8243; border_color_all=&#8221;#ffffff&#8221; custom_margin=&#8221;0px|||&#8221; animation_direction=&#8221;left&#8221; use_border_color=&#8221;off&#8221;][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;3.0.74&#8243; custom_padding=&#8221;||0px|&#8221; transparent_background=&#8221;off&#8221;][et_pb_row custom_padding=&#8221;||0px|&#8221; custom_margin=&#8221;||0px|&#8221; parallax_method_1=&#8221;off&#8221; module_class=&#8221;breadcrumbs-row&#8221; _builder_version=&#8221;3.0.47&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;3.0.47&#8243; parallax=&#8221;off&#8221; parallax_method=&#8221;off&#8221;][et_pb_text admin_label=&#8221;Breadcrumbs (do not remove)&#8221; module_class=&#8221;breadcrumbs&#8221; _builder_version=&#8221;3.17.6&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; module_alignment=&#8221;left&#8221; custom_css_main_element=&#8221;border-bottom: 1px solid #ececed;&#8221; use_border_color=&#8221;off&#8221; border_color=&#8221;#ffffff&#8221; border_style=&#8221;solid&#8221;]<\/p>\n<span><span><a href=\"https:\/\/sites.manchester.ac.uk\/reach-asd\/\">REACH-ASD<\/a><\/span><\/span>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; use_custom_gutter=&#8221;on&#8221; gutter_width=&#8221;2&#8243; specialty=&#8221;on&#8221; parallax_method_1=&#8221;off&#8221; parallax_method_2=&#8221;off&#8221; _builder_version=&#8221;3.17.6&#8243; transparent_background=&#8221;off&#8221;][et_pb_column type=&#8221;1_3&#8243; _builder_version=&#8221;3.0.47&#8243; parallax__hover=&#8221;off&#8221; parallax_method__hover=&#8221;off&#8221; parallax=&#8221;off&#8221; parallax_method=&#8221;off&#8221;][et_pb_sidebar area=&#8221;et_pb_widget_area_1&#8243; show_border=&#8221;off&#8221; admin_label=&#8221;Left Nav Sidebar&#8221; module_id=&#8221;left-nav-menu&#8221; _builder_version=&#8221;3.0.74&#8243; remove_border=&#8221;on&#8221;][\/et_pb_sidebar][\/et_pb_column][et_pb_column type=&#8221;2_3&#8243; specialty_columns=&#8221;2&#8243; _builder_version=&#8221;3.0.47&#8243; parallax__hover=&#8221;off&#8221; parallax_method__hover=&#8221;off&#8221; parallax=&#8221;off&#8221; parallax_method=&#8221;off&#8221;][et_pb_row_inner admin_label=&#8221;Row&#8221; _builder_version=&#8221;3.17.6&#8243;][et_pb_column_inner type=&#8221;4_4&#8243; saved_specialty_column_type=&#8221;2_3&#8243; _builder_version=&#8221;3.0.47&#8243; parallax__hover=&#8221;off&#8221; parallax_method__hover=&#8221;on&#8221; parallax=&#8221;off&#8221; parallax_method=&#8221;on&#8221;][et_pb_text _builder_version=&#8221;3.17.6&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; module_alignment=&#8221;left&#8221; use_border_color=&#8221;off&#8221; border_color=&#8221;#ffffff&#8221; border_style=&#8221;solid&#8221;]<\/p>\n<h1>What is REACH-ASD?<\/h1>\n<p>REACH-ASD is a research trial that aims to find out whether a new programme of group-based sessions helps parents whose child has recently been diagnosed with Autism Spectrum Disorder (ASD).<\/p>\n<p>We are working closely with clinical teams in the Greater Manchester and north-west area, and have only able to involve parents who have been referred through those teams.\u00a0<\/p>\n<p>[\/et_pb_text][et_pb_accordion _builder_version=&#8221;3.17.6&#8243; border_color_all=&#8221;#ffffff&#8221; use_border_color=&#8221;off&#8221;][et_pb_accordion_item title=&#8221;What does the trial aim to find out?&#8221; open=&#8221;off&#8221; _builder_version=&#8221;3.17.6&#8243; title_text_shadow_horizontal_length=&#8221;0em&#8221; title_text_shadow_vertical_length=&#8221;0em&#8221; title_text_shadow_blur_strength=&#8221;0em&#8221; body_text_shadow_horizontal_length=&#8221;0em&#8221; body_text_shadow_vertical_length=&#8221;0em&#8221; body_text_shadow_blur_strength=&#8221;0em&#8221;]<\/p>\n<p>The trial investigates a new group-based programme for parents called EMPOWER-Autism. We want to find out whether this programme helps parents:<\/p>\n<ul>\n<li>to feel emotionally well<\/li>\n<li>to adjust to the news of their child&#8217;s diagnosis<\/li>\n<li>to understand autism in their child<\/li>\n<li>to know some common strategies that can help autistic children and young people<\/li>\n<li>to feel confident and empowered in their role of parent.\u00a0<\/li>\n<\/ul>\n<p>We also want to find out whether the programme has other beneficial effects on the family and child with ASD. We will also look at whether the programme is cost-effective to the NHS.\u00a0<\/p>\n<p>[\/et_pb_accordion_item][et_pb_accordion_item title=&#8221;What is the EMPOWER-Autism programme?&#8221; open=&#8221;off&#8221; _builder_version=&#8221;3.17.6&#8243; title_text_shadow_horizontal_length=&#8221;0em&#8221; title_text_shadow_vertical_length=&#8221;0em&#8221; title_text_shadow_blur_strength=&#8221;0em&#8221; body_text_shadow_horizontal_length=&#8221;0em&#8221; body_text_shadow_vertical_length=&#8221;0em&#8221; body_text_shadow_blur_strength=&#8221;0em&#8221;]<\/p>\n<p>Within the trial some parents (selected at random) continued with the usual post diagnostic service offered by their local clinical team. Other parents (selected at random) were invited to attend the EMPOWER-Autism programme. This is so we can compare outcomes within the two groups to find out how helpful the new programme is.\u00a0<\/p>\n<p>The EMPOWER-Autism programme is a series of group-based workshops. The programme is designed to meet the needs of parents in the months following their child\u2019s ASD diagnosis. The programme offers:<\/p>\n<ul>\n<li>high quality, evidence-based information about autism<\/li>\n<li>personal accounts of what it is like to be autistic<\/li>\n<li>understanding the effects of autism on communication, sensory experiences, emotional regulation, and behaviour<\/li>\n<li>commonly-used strategies to help with the effects of autism<\/li>\n<li>information on the education system and your rights<\/li>\n<li>web-based resources with further information<\/li>\n<\/ul>\n<p>Parts of the programme were developed from a workshop approach delivered in Central Manchester for the past decade. Parents of children with ASD have said they like this approach and find it helpful.<\/p>\n<p>The programme also offers emotional support:<\/p>\n<ul>\n<li>time and space to reflect on your feelings about your child\u2019s diagnosis and being a parent to your child<\/li>\n<li>the chance to meet other parents and share experiences<\/li>\n<li>an emphasis on the importance of parents\u2019 wellbeing<\/li>\n<li>opportunities to identify personal parenting values and how to continue to live by these<\/li>\n<li>ways for parents to manage any stress or worries<\/li>\n<li>provide sources of information, help and support<\/li>\n<\/ul>\n<p>These parts of the programme are based on an approach called Acceptance and Commitment Therapy (ACT). This is an evidence-based approach that is helpful to a wide range of people adjusting to new life circumstances. It has been used with parents of autistic children by clinical research teams in Queensland (Australia) and Toronto (Canada).<\/p>\n<p>[\/et_pb_accordion_item][et_pb_accordion_item title=&#8221;How can I get involved?&#8221; open=&#8221;on&#8221; _builder_version=&#8221;3.17.6&#8243; title_text_shadow_horizontal_length=&#8221;0em&#8221; title_text_shadow_vertical_length=&#8221;0em&#8221; title_text_shadow_blur_strength=&#8221;0em&#8221; body_text_shadow_horizontal_length=&#8221;0em&#8221; body_text_shadow_vertical_length=&#8221;0em&#8221; body_text_shadow_blur_strength=&#8221;0em&#8221;]<\/p>\n<p>Recruitment has now ended <\/p>\n<p>[\/et_pb_accordion_item][\/et_pb_accordion][\/et_pb_column_inner][\/et_pb_row_inner][\/et_pb_column][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;3.0.47&#8243;][et_pb_row _builder_version=&#8221;3.0.48&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;3.0.47&#8243; parallax=&#8221;off&#8221; parallax_method=&#8221;on&#8221;][et_pb_image src=&#8221;https:\/\/sites.manchester.ac.uk\/reach-asd\/wp-content\/uploads\/sites\/192\/2019\/07\/information-for-clinical-partners-banner.jpg&#8221; admin_label=&#8221;Group of parents image&#8221; _builder_version=&#8221;3.17.6&#8243;][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;3.0.47&#8243;][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; admin_label=&#8221;Connect Title&#8221; module_class=&#8221;footer-section&#8221; _builder_version=&#8221;3.0.90&#8243; background_color=&#8221;#1d1d1d&#8221; custom_padding=&#8221;0px||0px|&#8221;][et_pb_row parallax_method_1=&#8221;off&#8221; parallax_method_2=&#8221;off&#8221; parallax_method_3=&#8221;off&#8221; admin_label=&#8221;row&#8221; module_id=&#8221;footer-row&#8221; _builder_version=&#8221;3.0.89&#8243; locked=&#8221;off&#8221;][et_pb_column type=&#8221;1_3&#8243; _builder_version=&#8221;3.0.47&#8243; parallax=&#8221;off&#8221; parallax_method=&#8221;off&#8221;][et_pb_text admin_label=&#8221;Contact Us Title&#8221; _builder_version=&#8221;3.0.74&#8243; text_text_color=&#8221;#ffffff&#8221; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; background_layout=&#8221;dark&#8221;]<\/p>\n<h4>Contact Us<\/h4>\n<p>[\/et_pb_text][et_pb_text admin_label=&#8221;Contact Us&#8221; module_class=&#8221;contact-us&#8221; _builder_version=&#8221;3.0.87&#8243; text_text_color=&#8221;#aaaaaa&#8221; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; use_border_color=&#8221;off&#8221; border_color=&#8221;#ffffff&#8221; border_style=&#8221;solid&#8221;]<\/p>\n<p>+44 (0) 161 306 6000<\/p>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=&#8221;1_3&#8243; _builder_version=&#8221;3.0.47&#8243; parallax=&#8221;off&#8221; parallax_method=&#8221;off&#8221;][et_pb_text admin_label=&#8221;Find Us Title&#8221; _builder_version=&#8221;3.0.74&#8243; text_text_color=&#8221;#ffffff&#8221; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; background_layout=&#8221;dark&#8221;]<\/p>\n<h4>Find Us<\/h4>\n<p>[\/et_pb_text][et_pb_text admin_label=&#8221;Address&#8221; module_id=&#8221;address&#8221; _builder_version=&#8221;3.0.87&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; background_layout=&#8221;dark&#8221; use_border_color=&#8221;off&#8221; border_color=&#8221;#ffffff&#8221; border_style=&#8221;solid&#8221;]<\/p>\n<p><a href=\"http:\/\/www.manchester.ac.uk\/discover\/maps\/interactive-map\/\">The University of Manchester<br \/>Oxford Rd<br \/>Manchester<br \/>M13 9PL<br \/>UK<\/a><\/p>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=&#8221;1_3&#8243; _builder_version=&#8221;3.0.47&#8243; parallax=&#8221;off&#8221; parallax_method=&#8221;off&#8221;][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"<p><span><span><a href=\"https:\/\/sites.manchester.ac.uk\/reach-asd\/\">REACH-ASD<\/a><\/span><\/span> What is REACH-ASD? REACH-ASD is a research trial that aims to find out whether a new programme of group-based sessions helps parents whose child has recently been diagnosed with Autism Spectrum Disorder (ASD). We are working closely with clinical teams in the Greater Manchester and north-west area, and have only able to involve parents [&hellip;]<\/p>\n","protected":false},"author":2265,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"<p>The EMPOWER-ASD programme has been developed from existing evidence-based clinical practice within the UK and abroad and through co-production with a range of NHS clinicians, researchers, and experts by experience (parents of autistic children and autistic adults). It is designed to be deliverable within the NHS and aims to address the needs of parents in the months following their child\u2019s ASD diagnosis.<\/p><p>The programme combines a number of key elements:<\/p><p>\u00a0<\/p><p>\u00a0<\/p><p>\u00a0<\/p><p>Psycho-education<\/p><p>Including<\/p><ul><li>high quality, evidence-based information about autism<\/li><li>personal accounts of what it is like to be autistic<\/li><li>understanding of the effects of autism on communication, understanding, sensory experiences, emotional regulation, and behaviour<\/li><li>commonly-used strategies to support communication, understanding, sensory experiences, emotional regulation, and behaviour<\/li><li>information on the education system and navigating rights and responsibilities within the education system<\/li><\/ul><p>This part of the programme is developed from a workshop approach delivered within Central Manchester for over a decade. Parents of children with ASD reported that they like this approach and find it helpful.<\/p><p>Psycho-therapeutic support<\/p><p>Psycho-therapeutic support for parents based on Acceptance and Commitment Therapy (ACT). This is an evidence-based approach that is helpful to a wide range of people adjusting to new life circumstances. It has been used with parents of children with ASD by clinical research teams in Queensland (Australia) and Toronto (Canada).<\/p><p>It offers:<\/p><ul><li>time and space to reflect on your feelings about your child\u2019s diagnosis and being a parent to your child<\/li><li>an emphasis on the importance of parents\u2019 wellbeing<\/li><li>opportunities to identify personal parenting values and how to continue to live by these<\/li><li>ways for parents to manage any stress or worries<\/li><\/ul><p>Extended and ongoing support<\/p><ul><li>the chance to meet with other parents and share experiences<\/li><li>web-based resources to extend programme content<\/li><li>signposting to ongoing sources of information, help and support<\/li><\/ul><p>\u00a0<\/p>","_et_gb_content_width":"","_exactmetrics_skip_tracking":false,"footnotes":""},"class_list":["post-1694","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/sites.manchester.ac.uk\/reach-asd\/wp-json\/wp\/v2\/pages\/1694","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/sites.manchester.ac.uk\/reach-asd\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/sites.manchester.ac.uk\/reach-asd\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/sites.manchester.ac.uk\/reach-asd\/wp-json\/wp\/v2\/users\/2265"}],"replies":[{"embeddable":true,"href":"https:\/\/sites.manchester.ac.uk\/reach-asd\/wp-json\/wp\/v2\/comments?post=1694"}],"version-history":[{"count":27,"href":"https:\/\/sites.manchester.ac.uk\/reach-asd\/wp-json\/wp\/v2\/pages\/1694\/revisions"}],"predecessor-version":[{"id":1825,"href":"https:\/\/sites.manchester.ac.uk\/reach-asd\/wp-json\/wp\/v2\/pages\/1694\/revisions\/1825"}],"wp:attachment":[{"href":"https:\/\/sites.manchester.ac.uk\/reach-asd\/wp-json\/wp\/v2\/media?parent=1694"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}