{"id":1559,"date":"2025-08-28T16:29:28","date_gmt":"2025-08-28T15:29:28","guid":{"rendered":"https:\/\/sites.manchester.ac.uk\/socialdevelopment\/?p=1559"},"modified":"2025-08-29T13:33:07","modified_gmt":"2025-08-29T12:33:07","slug":"pact20-preschool-autism-communication-trial-young-adult-follow-up-study","status":"publish","type":"post","link":"https:\/\/sites.manchester.ac.uk\/socialdevelopment\/2025\/08\/28\/pact20-preschool-autism-communication-trial-young-adult-follow-up-study\/","title":{"rendered":"PACT20+: Preschool Autism Communication Trial Young Adult Follow-up Study"},"content":{"rendered":"<p>[et_pb_section bb_built=&#8221;1&#8243; admin_label=&#8221;section&#8221; fullwidth=&#8221;on&#8221; next_background_color=&#8221;#000000&#8243; global_module=&#8221;322&#8243;][et_pb_fullwidth_menu global_parent=&#8221;322&#8243; _builder_version=&#8221;3.0.106&#8243; menu_id=&#8221;7&#8243; submenu_direction=&#8221;downwards&#8221; fullwidth_menu=&#8221;off&#8221; background_layout=&#8221;dark&#8221; module_class=&#8221;main-navigation&#8221; \/][\/et_pb_section][et_pb_section bb_built=&#8221;1&#8243; fullwidth=&#8221;off&#8221; specialty=&#8221;on&#8221; prev_background_color=&#8221;#000000&#8243; next_background_color=&#8221;#1d1d1d&#8221;][et_pb_column type=&#8221;2_3&#8243; specialty_columns=&#8221;2&#8243;][et_pb_row_inner locked=&#8221;off&#8221;][et_pb_column_inner type=&#8221;4_4&#8243; saved_specialty_column_type=&#8221;2_3&#8243;][et_pb_post_title _builder_version=&#8221;3.0.106&#8243; title=&#8221;on&#8221; meta=&#8221;on&#8221; author=&#8221;on&#8221; date=&#8221;on&#8221; categories=&#8221;on&#8221; comments=&#8221;on&#8221; featured_image=&#8221;on&#8221; featured_placement=&#8221;above&#8221; text_color=&#8221;dark&#8221; text_background=&#8221;off&#8221; locked=&#8221;on&#8221; parent_locked=&#8221;off&#8221; \/][et_pb_text _builder_version=&#8221;3.17.6&#8243; background_layout=&#8221;light&#8221; parent_locked=&#8221;off&#8221;]<\/p>\n<p>The\u00a0Preschool Autism Communication Trial (PACT)\u00a0was one of the largest studies ever of a communication-based therapy for\u00a0autistic children\u00a0and their families, and the only one to have undertaken a long-term follow-up study after therapy preserving the original intervention groups.<\/p>\n<p>It took place in London, Greater Manchester and North-East England. For both the previous phases of study, we met with families to obtain a detailed picture of how their child was developing, how things were going for the family, and the sorts of services that were being accessed.<\/p>\n<h2>Following up into early adulthood<\/h2>\n<p>PACT 20+ is a second follow-up phase of the PACT trial, this time into early adulthood. We plan to\u00a0connect with\u00a0as\u00a0many of the families who took part in the previous studies as possible.<\/p>\n<p>Little is known about what factors in childhood can affect early adulthood wellbeing and adaptation.\u00a0Building\u00a0a detailed picture of all the participants who took part in the previous studies, and how they have progressed, is important to\u00a0help\u00a0understand the different ways in which\u00a0therapeutic support in early childhood\u00a0may or may not impact on a range of aspects of life.<\/p>\n<p>This project involves an active collaboration between researchers, autistic young\u00a0adults and adults, and parents of autistic children. It will\u00a0investigate early adult outcomes, including effects on families and unpaid carers and enduring impact on health and social care service use. It will also include an exploration of the now young-adult participants&#8217; lived experiences.\u00a0<\/p>\n<h2>Key contributors<\/h2>\n<p>There are several institutions with key personnel contributing to the running of the PACT20+ study:\u00a0<\/p>\n<h3>University of Manchester<\/h3>\n<ul>\n<li>Professor Jonathan Green\u00a0(PI) [member of the\u00a0Senior Leadership Group]<\/li>\n<li>Dr Charlotte Rothwell<\/li>\n<li>Ms Megan Pritchard<\/li>\n<\/ul>\n<h3>Birkbeck University of London<\/h3>\n<ul>\n<li>Professor Jonathan Smith [member of the\u00a0Senior Leadership Group]<\/li>\n<li>Dr Rachel Starr\u00a0 \u00a0 \u00a0<\/li>\n<\/ul>\n<h3>London School of Economics<\/h3>\n<ul>\n<li>Professor Martin Knapp [member of the\u00a0Senior Leadership Group]<\/li>\n<li>Dr Magdalena Walbaum\u00a0\u00a0<\/li>\n<\/ul>\n<h3>Newcastle University<\/h3>\n<ul>\n<li>Professor Jeremy Parr<\/li>\n<li>Dr Jessica Maxwell<\/li>\n<\/ul>\n<h2>Advisory group members<\/h2>\n<p>There are additional advisory group members attached to each study phase, with some overlaps in personnel and\u00a0including Experts by Experience, who are engaged in advising the Work Packages and providing a reference point for decisions.\u00a0<\/p>\n<h3>University of Manchester<\/h3>\n<ul>\n<li>Ms Karen Leneh Buckle<\/li>\n<li>Dr Richard Smallman<\/li>\n<li>Dr Catherine Aldred<\/li>\n<li>Dr Kathy Leadbitter<\/li>\n<\/ul>\n<h3>Birkbeck University\u00a0of London<\/h3>\n<ul>\n<li>Dr Emily Jones<\/li>\n<\/ul>\n<h3>London School of Economics<\/h3>\n<ul>\n<li>Dr Michela Tinelli<\/li>\n<li>Dr Camilla Fasano<\/li>\n<li>Ms Maria Karagiannidou<\/li>\n<\/ul>\n<h3>Newcastle University<\/h3>\n<ul>\n<li>Professor Helen McConachie<\/li>\n<li>Professor Ann Le Couteur<\/li>\n<li>Dr Victoria Grahame\u00a0<\/li>\n<\/ul>\n<h3>King&#8217;s College London<\/h3>\n<ul>\n<li>Professor Tony Charman<\/li>\n<li>Professor Patricia Howlin<\/li>\n<li>Professor Andrew Pickles<\/li>\n<li>Dr Vicky Slonims<\/li>\n<\/ul>\n<h3>University of Kent<\/h3>\n<ul>\n<li>Professor Nicola Shaughnessy<\/li>\n<li>Dr Damian Milton<\/li>\n<\/ul>\n<h3>University of Surrey<\/h3>\n<ul>\n<li>Dr Emma Williams\u00a0<\/li>\n<\/ul>\n<h3>University of Milano-Bicocca<\/h3>\n<ul>\n<li>Professor Erica Salomone<\/li>\n<\/ul>\n<h2>Find out more<\/h2>\n<p>For further information, please contact Megan Pritchard, PACT20+ Research Assistant.<\/p>\n<p>Email: <a href=\"mailto:megan.pritchard-2@manchester.ac.uk\">megan.pritchard-2@manchester.ac.uk<\/a><\/p>\n<p>[\/et_pb_text][et_pb_post_nav _builder_version=&#8221;3.0.106&#8243; 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