{"id":2032,"date":"2021-02-06T19:05:59","date_gmt":"2021-02-06T19:05:59","guid":{"rendered":"https:\/\/sites.manchester.ac.uk\/sord\/?page_id=2032"},"modified":"2021-03-02T13:09:55","modified_gmt":"2021-03-02T13:09:55","slug":"parents-experiences-with-deaf-children-with-autism-part-of-the-diagnostic-instruments-for-autism-in-deaf-children-diads-study","status":"publish","type":"page","link":"https:\/\/sites.manchester.ac.uk\/sord\/themes\/parents-experiences-with-deaf-children-with-autism-part-of-the-diagnostic-instruments-for-autism-in-deaf-children-diads-study\/","title":{"rendered":"Parents experiences with deaf children with autism"},"content":{"rendered":"

[et_pb_section bb_built=”1″ admin_label=”section” fullwidth=”on” next_background_color=”#000000″ global_module=”322″][et_pb_fullwidth_menu global_parent=”322″ _builder_version=”3.0.106″ menu_id=”7″ submenu_direction=”downwards” fullwidth_menu=”off” background_layout=”dark” module_class=”main-navigation” \/][\/et_pb_section][et_pb_section bb_built=”1″ fullwidth=”off” specialty=”off” transparent_background=”off” allow_player_pause=”off” inner_shadow=”off” parallax=”off” parallax_method=”on” make_fullwidth=”off” use_custom_width=”off” width_unit=”on” make_equal=”off” use_custom_gutter=”off” custom_padding=”||0px|” prev_background_color=”#ffffff” next_background_color=”#ffffff”][et_pb_row allow_player_pause=”off” parallax=”off” parallax_method=”on” parallax_1=”off” parallax_method_1=”off” make_fullwidth=”off” use_custom_width=”off” width_unit=”on” use_custom_gutter=”off” make_equal=”off” custom_margin=”||0px|” custom_padding=”||0px|” module_class=”breadcrumbs-row” background_position=”top_left” background_repeat=”repeat” background_size=”initial”][et_pb_column type=”4_4″][et_pb_text admin_label=”Breadcrumbs (do not remove)” background_layout=”light” text_orientation=”left” use_border_color=”off” border_color=”#ffffff” border_style=”solid” module_class=”breadcrumbs” custom_css_main_element=”border-bottom: 1px solid #ececed;” module_alignment=”left” background_position=”top_left” background_repeat=”repeat” background_size=”initial”]<\/p>\nSocial Research with Deaf People<\/a><\/span><\/span>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section bb_built=”1″ fullwidth=”off” specialty=”on” transparent_background=”off” allow_player_pause=”off” inner_shadow=”off” parallax=”off” parallax_method=”on” parallax_1=”off” parallax_method_1=”off” parallax_2=”off” parallax_method_2=”off” make_fullwidth=”off” use_custom_width=”off” width_unit=”on” make_equal=”off” use_custom_gutter=”on” gutter_width=”2″ prev_background_color=”#ffffff” next_background_color=”#1d1d1d”][et_pb_column type=”1_3″][et_pb_sidebar admin_label=”Left Nav Sidebar” area=”et_pb_widget_area_1″ orientation=”left” remove_border=”on” background_layout=”light” module_id=”left-nav-menu” show_border=”off” \/][\/et_pb_column][et_pb_column type=”2_3″ specialty_columns=”2″][et_pb_row_inner admin_label=”Row”][et_pb_column_inner type=”4_4″ saved_specialty_column_type=”2_3″][et_pb_text _builder_version=”3.17.6″]<\/p>\n

Parents experiences with deaf children with autism<\/h1>\n

Part of the Diagnostic Instruments for Autism in Deaf Children (DIADS) study<\/h2>\n

Diagnostic Instruments for Autism in deaf children (DIADS) is a research project funded by the Medical Research Council with Deaf \u2013 Child and Adolescent Mental Health Services (CAMHS). SORD was involved as we wanted to explore parents\u2019 perspectives of knowing or suspecting that their child was either deaf, autistic or both.<\/p>\n

\u00a0<\/p>\n

https:\/\/htserv.mhorn.manchester.ac.uk\/public\/mh_default_org\/oaipmh-default\/6331ba43-7021-4362-b303-2271cf0a4a85\/c348fb3e-6fff-40fd-854a-b9cb679ffbc4\/Diagnostic_instruments_autism.mp4<\/a><\/video><\/div>\n

Research aims<\/h3>\n

We carried out interviews with parents who were hearing and Deaf all over the UK to ask them about when they knew that their child was perhaps deaf or autistic, or both, and what the key factors were that indicated this. We also asked what challenges there were in discussing these thoughts with professionals while their children were young and whether they were heard, or ignored, or whether parents felt that they knew more than they did.<\/p>\n

The interviews revealed that the parents strongly felt that their knowledge was more concrete but there were barriers in discussing this with professionals who wanted to wait until their child was older.<\/p>\n

Our findings<\/h3>\n

Parents said they were conscious of their child maybe not reaching developmental milestones as their child was either deaf or autistic. They were not sure if their child\u2019s behavior was always linked to their deafness or their autism \u2013 it was difficult to define. Parents\u2019 held a strong view that they knew best and thus should be heard more by the professionals and not wait for a formal diagnosis to confirm their knowledge.<\/p>\n

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Publications and more information<\/h3>\n