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Last call for Abstract Submissions

Last call for Abstract Submissions

We are pleased to announce the abstract submission deadline has been extended to Friday 8 May at 5pm.Don’t miss this fantastic opportunity to showcase your work on the latest scientific advances in Alport syndrome!You can register and submit your abstract here:...

The 2025 International Workshop on Alport Syndrome

The 2025 International Workshop on Alport Syndrome

The 2025 International Workshop on Alport Syndrome took place in Beijing, China 4th-7th September  Alport UK led the organisation of this amazing international workshop in the heart of Beijing. We started with an information day for Chinese and other visiting...

Alport Patient Information Day 2026 – Save the Date

Alport Patient Information Day, Nottingham

Alport Patient Information Day - Saturday 5th July, Nottingham. Alport UK hosted another successful patient information and social at the The Queen’s Medical Centre Postgraduate Centre. Nottingham Alport information day flyerThis was a fantastic day with local host Dr...

Alport Research Hub Symposium 2025

Alport Research Hub Symposium 2025

We were pleased to be able to host our 2nd annual Hub Symposium on Wednesday 2nd July in Manchester. Our comprehensive programme featured 16 talks, alongside networking and discussion opportunities. The morning session led by Rachel Lennon, (University of Manchester)...

Alport Research Hub – Grant Round 2025

As part of the Hub 5-year funding restricted funds of 250k per year was allocated for 3 novel projects (750k total). The 1st round of funding was awarded to Dr Kenton Arkill at Nottingham, the 2nd Grant was awarded to Dan Jagger at The Hearing Institute, UCL. The...

RaDaR 15 year celebration event

RaDaR 15 year celebration event

The RaDaR 15 year celebration took place on Thursday 22 May 2025 at Resource for London.   Around 1200 Alport patients are now registered in the Alport cohort within the UK’s really impressive Rare Renal Disease Registry (RaDaR).   This event was an occasion...