Newsletter Edition #4
When/how to do genetic testing for Alport? And how do I interpret what comes back?GeNotes from NHS England provides valuable information:Alport and thin BM nephropathy - info on phenotypes and how to interpret reportsAll of GeNotes nephrology is a hub for info on when...
The 2026 International Workshop on Alport Syndrome
This year’s International Alport Workshop will take place from 5th – 7th September in Budapest, Hungary. The scientific workshop will run from 5pm on Saturday until 3pm on Monday. There will also be a Patient Day on Saturday 5th September, this is free to attend with...
Alport Research Hub Symposium 2026
Our annual symposium took place on Friday 3 July at the Institute for Child Health in London. We were excited to welcome close to 100 delegates. Attendees were approximately 30% clinicians, 30% researchers, pharmaceutical representatives, and patients. We had six...
Newsletter Edition #3
May 20262026 Alport Research Hub SymposiumWe would like to take the opportunity to remind you that our 2026 Hub Symposium will take place on Friday 3rd July at the Institute for Child Health in central London. We hope you can join us! Though we encourage in-person...
Newsletter Edition #2
2026 Alport Research Hub Symposium Planning is in progress for an all-day meeting on Friday 3 July at the Institute for Child Health in central London. It will be followed by an Alport UK Information Day (Saturday 4 July) for patients and families, also in London...
Last call for Abstract Submissions
We are pleased to announce the abstract submission deadline has been extended to Friday 8 May at 5pm.Don’t miss this fantastic opportunity to showcase your work on the latest scientific advances in Alport syndrome!You can register and submit your abstract here:...
Save the Date – Alport Research Hub Symposium 2026
Are you a researcher or healthcare professional interested in Alport Syndrome? Join us for the 2026 Alport Research Hub Symposium Registration is now open and includes the full programme: Alport Research Hub Symposium - Kidney Research UK Date: Friday 3 July...
Clinicians and Patients working together on educating our next generation of nephrologists
Our Hub Director Prof Rachel Lennon and the inspirational Susie Gear (CEO of Alport UK) were delighted to speak at the Advanced Nephrology Course 2026 on the 8th January 2026. The talk was titled ' Improving diagnosis and treatment in Alport syndrome with patient...
How collaboration with industry is advancing Alport Syndrome research
We are excited to share our Alport Research Hub case study on: Collaborating with industry to research Alport syndromeThis highlights how academic-industry collaborations can accelerate innovation.For the full article please visit...
Alport Patient Information Day 2026 – Save the Date
Alport Easter Social - Saturday 21st March 2026 in London. This event is open to all, and is free to attend. Alport Easter social flyer Related Contact Us +44 (0) 161 306 6000 Find Us The University of ManchesterOxford RdManchesterM13 9PLUK...
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