Category: Newsletters

Newsletter Edition #4

When/how to do genetic testing for Alport? And how do I interpret what comes back?GeNotes from NHS England provides valuable information:Alport and thin BM nephropathy - info on phenotypes and how to interpret reportsAll of GeNotes nephrology is a hub for info on when...

Newsletter Edition #3

Newsletter Edition #3

May 20262026 Alport Research Hub SymposiumWe would like to take the opportunity to remind you that our 2026 Hub Symposium will take place on Friday 3rd July at the Institute for Child Health in central London. We hope you can join us! Though we encourage in-person...

Newsletter Edition #3

Newsletter Edition #2

2026 Alport Research Hub Symposium Planning is in progress for an all-day meeting on Friday 3 July at the Institute for Child Health in central London. It will be followed by an Alport UK Information Day (Saturday 4 July) for patients and families, also in London...

Newsletter Edition #3

Newsletter Edition #1

It’s our third year, and there are more things to report on than we could have imagined. We’ll only be able to point to some of these in each edition. Hub research has two key elements: the Physical Hub means the Lennon Lab group in Manchester and collaborators...