UK JIA Biologics Registers: the BCRD and BSPAR Etanercept Studies
What are the studies about?
Two studies called Biologics for Children with Rheumatic Diseases (BCRD) and BSPAR Etanercept Study (BSPAR ETN) are underway at hospitals throughout the UK to look at the safety and effectiveness of biologic and biosimilar treatment for Juvenile Idiopathic Arthritis (JIA).
As part of the studies, long term follow-up information regarding changes to the disease and any newer illnesses is collected to determine the safety and effectiveness of these types of treatments.
What is biologic therapy?
Take a look at this short video to learn all you need to know about biologic therapy.
Can I join the study?
Children and young people under the age of 18 are able to join the studies if they meet the following criteria:
Biologic/biosimilar treated group
Participant starting any biologic or biosimilar therapy (excluding Enbrel or any etanercept biosimilar) to be registered with BCRD.
Participant can have received other biologics/biosimilars in the past.
Help shape our research
Are you interested in helping to shape research in to new treatments for JIA?
Apply to JOIN US!
We are looking for new members of our steering committee and would love to have input from the JIA community in to how we can take our research forward.
Who we are
We are the UK JIA Biologics Register – a research study that was set up over ten years ago to monitor the safety and effectiveness of new treatments for JIA.
Who are we looking for?
- A young person with JIA (age 16+).
- An adult who has caring responsibilities for a child/young person with JIA.
What we would expect from you?
- Attendance at scientific steering committee meetings (usually approx. 2 hours, twice a year. Attendance can be via Zoom).
- Your thoughts and opinions on what is presented at the meeting – this might include things like study recruitment, how we can engage with the JIA community and helping to advise on what questions should be answered using the data that has been collected.
- Review of any participant/public-facing information from the study (such as study newsletters, information on the website, updates to study documentation)
There is a payment associated with attending the steering committee meetings.
If you would like any further information or are interested in applying, please get in touch.