Newsletter Edition #1
It’s our third year, and there are more things to report on than we could have imagined. We’ll only be able to point to some of these in each edition. Hub research has two key elements: the Physical Hub means the Lennon Lab group in Manchester and collaborators...
The 2025 International Workshop on Alport Syndrome
The 2025 International Workshop on Alport Syndrome took place in Beijing, China 4th-7th September Alport UK led the organisation of this amazing international workshop in the heart of Beijing. We started with an information day for Chinese and other visiting...
Alport Patient Information Day, Nottingham
Alport Patient Information Day - Saturday 5th July, Nottingham. Alport UK hosted another successful patient information and social at the The Queen’s Medical Centre Postgraduate Centre. Nottingham Alport information day flyerThis was a fantastic day with local host Dr...
Alport Research Hub Symposium 2025
We were pleased to be able to host our 2nd annual Hub Symposium on Wednesday 2nd July in Manchester. Our comprehensive programme featured 16 talks, alongside networking and discussion opportunities. The morning session led by Rachel Lennon, (University of Manchester)...
Alport Research Hub – Grant Round 2025
As part of the Hub 5-year funding restricted funds of 250k per year was allocated for 3 novel projects (750k total). The 1st round of funding was awarded to Dr Kenton Arkill at Nottingham, the 2nd Grant was awarded to Dan Jagger at The Hearing Institute, UCL. The...
RaDaR 15 year celebration event
The RaDaR 15 year celebration took place on Thursday 22 May 2025 at Resource for London. Around 1200 Alport patients are now registered in the Alport cohort within the UK’s really impressive Rare Renal Disease Registry (RaDaR). This event was an occasion...
Save the Date – Alport Research Hub Symposium 2025
Are you a researcher or healthcare professional interested in Alport Syndrome? Join us for the 2025 Alport Research Hub Symposium on Wednesday 2 July, 10.00-4.45pm at the Michael Smith Building Lecture Theatre, University of Manchester. Chaired by Professors...
Alport Research Hub Symposium 2024 – Programme
As the 5th of July 2024 approaches, we are excited to present our comprehensive programme featuring 17 talks, alongside networking and discussion opportunities at the Alport Research Hub Symposium. Join us for the morning session of clinical discussions led by Neil...
Alport Research Hub Symposium 2024
Come and join us at the Alport Research Hub Symposium, Friday 5th July 2024 in sunny (possibly) Manchester. Clinicians, researchers, patients, and industry representatives are all welcome to come and explore the virtual and physical Hub, along with the exciting...
The 2024 International Workshop on Alport Syndrome
The 2024 International Workshop on Alport Syndrome took place in Cyprus 13th-16th March 2024. Another outstanding meeting was held at the Royal Hall in Nicosia, local host Prof Constantinos Deltas. The first day was entirely for patients, then an intense schedule of...
Contact Us
+44 (0) 161 306 6000
Recent Comments